Tuesday, October 19, 2004

God, will I ever shut up?



First, this blog really pisses me off. Is it Brinkster, who hosts our server (I think that's what Brinkster does anyway) or is it the blog code? I don't freaking know. All I know is pretty much 85% of the time, when I try to access my blog, I get various errors. Page not found, line 135 sucks, line 105 bites. How can I expect to keep any readers if my blog is unreadable? It frustrates the living crap out of me. Time is tight right now, but when he gets the chance, I'm going to beg Tony to check into it. Big time.

Second...let me think. Oh yeah. My dad. An additional xray and a floroscope (I think that's what dad said) showed that no part of anything foreign (catheter, catheter line) is in Dad's chest. What they saw on the first xray must have been a shadow. Well, thank god. He started chemo Monday the 11th and received treatments until this past Saturday. He has been in such a wonderful mood. Very positive. Upbeat. Really odd for him lately. I know he was feeling rather nauseous the past few days, but they've been giving him meds to help stave that. The bone marrow stem cell transplant was yesterday. It's just like a blood transfusion, very much a simple procedure. It only lasted one hour. I did not visit him last night - more on that later - but Mom said he was feeling really crappy and slept most of the time she was there.

Third...Cameron. Yesterday, we had an appointment with his urologist to follow up on his penile adhesion (doesn't that sound horrid? In fact, it's just a bit of skin that regrew from his circumcision) and hydrocele (fluid around his testicle). Cam had the day from hell yesterday. ***Oh, let me backtrack. Sunday, Staci and Jason (brother-in-law & sister-in-law) watched Cam at their house while Tony and I visited Dad. Tony left to go pick up Cam and I stayed to visit with Dad longer. Tony fed Cam dinner and then picked me up from the hospital. When I got into the car, he told me Cam had a raised rash all over his legs. At home, I checked it out and he had four big palm-sized raised, splotchy nasty-looking welt-like things on both of his thighs. No fever, no complaining from C-note. I looked up some stuff on the internet and decided that if they were still bad Monday morning, I'd call the pediatrician. Yesterday morn, they were different. Not solid splotches anymore, but little clusters that looked much less threatening. By 1pm, they were completely gone. Guess it was just hives...a reaction to something at Staci & Jason's.*** Anway, back to Cameron's day from hell. He woke up acting ok. A little clingy, perhaps. He got tired around his usual morning naptime and I put him in his crib. He fussed a bit for a while, and then he screamed, cried, kicked, coughed, got red-faced off and on for like 30 minutes. He was pissed. I finally gave up and got him up to give him his lunch. Well, he would not let me out of his sight. Actually, he would not let me 2 feet from him. He ate his lunch, but cried and fussed all the way through it. I gave him a bath, where he did ok - only threw a minor fit there. After the bath, I thought I'd give sleep another shot. It was now 2pm and we had to leave at 3pm to pick Tony up from work on the way to the urology appointment. He fell asleep almost immediately. Around 2:50, I had to wake him up. I felt bad, but we had to leave. He was so groggy. He dozed on the way to pick Tony up. (oh, let me brag that I showered, brushed teeth, dressed, got diaper bag ready, got cam's clothes out of dryer and folded them, cleaned up the counter from lunch in record time while he napped!) Cam was a bear and a half while in the waiting room and in the exam room (we waited for the doctor FOR-ever). Well, he wasn't too bad in the waiting room - he played with the toys a little, watched the other kids and took us for several walks, in addition to being fussy.

Ok, so the exam. Cameron still has his hydrocele on his right testicle. The cream we were given six months ago did not help the adhesion (no duh) so that needs to be fixed too. I was kinda surprised about he hydrocele still being present - I thought maybe it had gotten better. Of course it does by 12 months in most kids. My kid isn't most kids (more ranting on that later)! Another damn surgery is in order. The exam was short and sweet and we were off. He was a little fussy in the car, but his demeanor had improved, so we decided to chance dinner out, then Cam and Tony would drop me off at the hospital to see dad while they shopped. So, we drive to Kenwood (the hospital is like, oh, 20 miles from our house - just guessing - and like 10 miles from Children's, where the appointment was) in horrible traffic, trudging through the pouring rain (it rained all day, adding to Cam's sour mood, I guess). By the time we got to Max and Erma's, Cameron looked totally tired. He fussed all the way through dinner, but probably didn't disturb the other diners, since there were 75 billion other screaming kids in the restaurant as well! He was just a mess by the time we left that we decided to skip the hospital and just get this kid home. Good decision, I believe.

He slept well all night, until like 4:30. He was still awake at 5:00 so I brought him to our bed. I've been doing that lately, especially since his eye surgery. So sue me, I'm too damn tired at 5am to get up with Cam. He goes back to sleep, and I like to feel him next to me (for a short bit, anyway!)

Surgery details. I just got off the phone with the surgery scheduler. The urologist will perform a revision of his circumcision (get rid of the extra band of skin) and will remove the hydrocele on his right testicle, and do an extensive exam for any fluid on the left. Surgery is scheduled for Tuesday, November 23rd. We have to be there at 8:15 and the surgery is at 9:15. Cam has to have another pre-op physical with his pediatrician - I scheduled that for Wednesday, November 17th.

Cam is so unlucky! I mean, he is a totally healthy kid. No lung, heart, kidney problems. But all this little crap keeps cropping up. How can a healthy kid have so many doctor appointments and two surgeries in the first year and a half of his life? First, the laryngomalacia. Had to see an ENT monthly for that through December, 2003. That's all but gone now (you hear it occasionally when he's really sleepy or concentrating hard). Thank god. No procedures or surgeries for that. Then the blocked tear ducts, which are very common but usually clear up by 12 months. Of course, they don't clear up in my baby! So, surgery for that. Now the hydrocele. Also common, also usually clears up by 12 months. Not for my unlucky boy! And the penile adhesion. Blah. Poor kid. And honestly, poor Mom and Dad!

Okay, done whining!

I am going to visit Dad tonight. After a quick meal of crock pot chicken and dumplings. Hope it turns out well. It's smelling wondrous! Today, I am thankful for frozen crock pot meals by Banquet. Otherwise, we'd be eating out. Again. We had the Banquet crock pot beef stew a week or two ago. It was decent, but it did not knock my socks off or anything. I hope the chicken and dumplings does.

Oh! Oh! I have to tell you. Cameron loves loves loves Morningstar Farms fake-chicken nuggets (Chik'n Nuggets are a wholesome blend of vegetable and grain protein with 75% less fat than chicken nuggets.) What a granola, vegetarian freak my son is! He gobbled down three nuggets for lunch today. I'll bet he'd like the zucchini meatballs (which I'm positive are not meat, but are delicious) at our favorite Chinese buffet. Cam = tree hugger.

(thank god for spell-check...you would not believe the number of misspelled words in this entry!)
- Posted @ 10/19/2004 3:55:54 PM

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